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The charge of the MLA Cancer Librarians Recommended Web Sites project
is to provide medical librarians with a resource to use in their daily practice and teaching.
Secondly, it is our contribution to the Medical Library Association so that the headquarters
staff can refer oncology professionals to a list of quality health web sites.
Our goal is to have a limited number of resources that meet the quality criteria for currency, credibility,
content, audience, etc., as described on our website. The Cancer Librarians Section has a guide
for Evaluating Websites that contains
good tips for assessing health information on the Internet.
A PDF version of this list is also available.
Editor: Jan T. Orick, MLIS, AHIP
St Jude Children's Research Hospital, Biomedical Library
Memphis, TN
American Cancer Society: Cancer in Children
The American Cancer Society website provides a Detailed Guide and information on specific forms of childhood cancer. The website includes information about diagnosis, treatment, coping and support, and surviving childhood cancer.
American Childhood Cancer Organization (ACCO)
Provides information on cancer; insurance and legal guidance to families of children with cancer and adult survivors of childhood cancer; information on comprehensive survivor follow-up care; late-effects of cancer treatment, and second malignancies; and books for children, caregivers, and teachers. Also offers parent support groups in most states.
American Society of Pediatric Hematology/Oncology
This web site is a forum for communication about the field of pediatric hematology/oncology and ASPHO's programs for its
members. It also serves patients and families by providing a source of current peer-reviewed scientific and clinical research and links to aid in
finding other related information through the Internet.
Cancer in Children - MedlinePlus
MedlinePlus provides an excellent start to locating information about childhood and adolescent cancer including links to diagnosis, treatment, news, clinical trials, research, dictionaries, directories, and videos.
Childhood
Cancer Guides
This is a not-for-profit group of individuals.
The educational website that shares portions of the books, provides
referrals to helpful resources, and additional links. Content is from the
books on childhood cancer and leukemia co-authored by Nancy Keene.
Childhood Cancers
The National Cancer Institute’s Factsheet provides information and statistics about childhood cancers.
CureSearch
This site contains comprehensive coverage for all aspects of childhood cancer for
health professionals, patients, and families. CureSearch is a united effort
of the Children's Oncology
Group (COG) and the National Childhood Cancer Foundation (NCCF).
KidsHealth Cancer Center
Sponsored by Nemours, KidsHealth is the most-visited site on the Web for
information about health, behavior, and development from before birth through the teen years. All
KidsHealth articles, animations, games, and other content go through a rigorous medical
review by pediatricians and other medical experts. Ongoing, scheduled medical reviews
ensure the information is as up-to-date as possible. The KidsHealth Cancer Center
contains information tailored to Parents, Kids and Teens.
Starlight Starbright
This site brings together experts from pediatric health care, technology,
and entertainment to create programs that educate, entertain and inspire
seriously ill children. The website provides access for children and teens
to find friends online, learn more about a disease, or just spend time
together with their family, the programs help children and families deal
with the challenges of being sick. The website provides online animated
stories to explain about specific illnesses and procedures.
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Editor: Carrie Arnold, CHES
University of Utah, Huntsman Cancer Institute
Salt Lake City, UT
National Cancer Institute (NCI): Clinical Trials
This is a comprehensive resource from the NCI that provides links to educational materials
describing what clinical trials are and why they are important, a searchable database for current
cancer clinical trials that are recruiting patients, and a link to summaries of noteworthy results
from completed clinical trials.
Coalition of Cancer Cooperative Groups
This organization provides information to improve public and patient awareness of clinical trials.
The site provides access to TrialCheck®, a searchable database for current cancer clinical trials.
TrialCheck® contains more than 4,000 cancer clinical trials from Cooperative Groups, National
Cancer Institute (NCI), academic centers, and pharmaceutical and biotech companies, and it is
updated on a daily basis.
ClinicalTrials.gov
This National Library of Medicine site provides regularly updated information about
federally and privately supported clinical research for a variety of diseases and
conditions taking place in the United States and in 153 countries.
Advanced searches of the site allow visitors to refine results to focus on Cancer and other Neoplasms or Blood and Lymph Conditions.
CenterWatch
This commercial site contains a listing of more than 41,000 industry and government-sponsored clinical trials (not all
specific to Oncology) as well as new drug therapies recently approved by the
FDA.
Clinical Trials Group, National Cancer Institute of Canada (NCIC CTG)
The official web site of the National Cancer Institute of Canada's Clinical Trials Group.
It provides information about their programs.
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Editor: Gail Y. Hendler, MLS, AHIP
Loyola University Chicago Health Sciences Library
Maywood, IL
American Cancer Society
This comprehensive website offers a wealth of information in English and
Spanish to patients/survivors, their families and caregivers, and the
public. Noteworthy for its growing collection of various Asian language
documents, and for links to statistics; a cancer drug database; support
resources; NCCN patient treatment guidelines; treatment center locator, and
treatment decision tools meant to help patients make better informed
healthcare decisions.
CancerBackup
Staffed by cancer nurses, the largest specialist cancer information service
in Europe is located in the UK and provides high-quality, online patient
information about precancerous conditions; cancer background information and
information by type; treatments ranging biological, hormonal, supportive and
complementary therapies. The site also links to a European clinical trials
database, and a searchable list of 1,000 questions and answers about cancer.
CancerCare
CancerCare’s mission is to provide free professional support services to anyone diagnosed with cancer, their
friends, relatives and caregivers. The CancerCare website provides links to
the “Reading Room” that contains PDF brochures discussing various cancer
types and their medical, emotional and practical concerns in English and
Spanish. An online community message board is available as well as links to
information about support groups and monthly schedules for telephone
education sessions.
Cancer in Multiple Languages - MedlinePlus
Cancer Chemotherapy in Multiple Languages - MedlinePlus
Living with Cancer in Multiple Languages - MedlinePlus
Cancer.Net
The American Society of Clinical Oncology (ASCO) offers peer-reviewed
information for patients, families and caregivers. Coverage includes over
85 types of cancer, basic cancer information, support, coping, advocacy, and
information about special populations. Special and notable features on this
website include a Medical Illustrations Gallery of common cancer sites
organized by cancer type; ASCO Patient Guides that comprise a growing list
of well-written and up-to-date documents on a variety of discrete subjects
such as, Understanding Tumor Markers for Breast and Colon Cancer, and
a monthly “Ask the Expert” forum meant to invite patients, families, and the
public to ask leading cancer experts questions via an online chat forum.
CancerQuest
Emory University has done an outstanding job in explaining tumor biology to patients,
family and other interested users. Vido and text clearly present complex concepts
with information translated into Spanish, Chinese and Russian.
Cancer Journey
The Oncology Nursing Society provides practical and reliable information for patients and caregivers that summarizes reviews for symptom management research based on available evidence. Information ranking the various treatment options are available via an interactive profiler that required registration.
Corporate Angel Network
Thanks to 530 American corporations, cancer patients can receive free
flights to and from approved cancer treatment facilities anywhere in the
United States on unused seats on corporate jets.
Family Caregiver Alliance
Information in multiple languages about services and support for caregivers and families living with chronic illness.
Inside Cancer
This website is a guide for the layman about the biology of cancer; how
cancer occurs, evolves and how it can be treated. Curated by the Cold
Spring Harbor National Laboratory, experts in the field combine with clear
graphics and text to explain cancer on the molecular level.
Medlineplus
The National Library of Medicine(NLM) offers patients and the public links
authoritative, full-text information from the NLM, the National Institutes
of Health (NIH), and other government agencies and select health-related
organizations. In addition to a comprehensive collection of cancer
information, special features include “easy to read” documents, low-vision
documents, and a selection of interactive health tutorials on a variety of
cancer topics.
National Cancer Institute's Cancer.gov
In addition to the PDQ cancer information summaries for patients, this
website contains links to statistics, the Dictionary of Cancer Terms, NCI
Drug Dictionary, clinical trials search, Cancer Genetics Service directory,
and the “Understanding Cancer” series that enhances learning about the
science behind the medicine.
National Cancer Institute's Cancer.gov en Espanol
A new Spanish language Web site provides Hispanic/Latino communities with
accurate and up-to-date cancer information. Visitors can learn about different
types of cancer, treatments, detection and prevention as well as read about the
experiences of Latino cancer survivors.
Patient Advocate Foundation
This non-profit organization was established in 1996 to assist cancer
patients resolve insurance, debt, employment and discrimination issues due
to cancer diagnosis. The organization actively “seeks to provide avenues of
access to insurance funding for evolving cancer therapies” and acts as a
liaison between patients and their insurers, creditors and employers.
ThyCa: Thyroid Cancer Survivors' Association, Inc.
ThyCa: Thyroid Cancer Survivors' Association, Inc. is a non-profit 501(c)(3) organization of thyroid cancer survivors,
family members, and health care professionals. It is dedicated to support, education, and communication
for thyroid cancer survivors, their families and friends. They sponsor Thyroid Cancer Awareness Month,
year-round awareness activities, and thyroid cancer research fund raising and research grants.
Your Disease Risk
Barnes-Jewish Hospital and Washington University School of Medicine maintain this interactive tool
that allows users to estimate risk for 12 different cancer types and offers personalized tips on how
to best prevent these cancers.
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Editor: Frank Davis, MSLS, AHIP
University of Kentucky Medical Center Library
Lexington, KY
American Cancer Society
The ACS site has information for both healthcare professionals and patients
that includes disease overviews, treatment options, prevention and coping
strategies, and news.
American Society of Clinical Oncology
ASCO membership is comprised of clinical oncologists from all oncology disciplines and sub-specialties. The web site
has information for practice guidelines, policy statements, career
development, and news.
American Society for Therapeutic Radiology and Oncology (ASTRO)
The site has links to resources for research, economics, government issues,
and patient information.
Association of Community
Cancer Centers
The ACCC helps oncology professionals adapt to the complex challenges of program
management, cuts in reimbursement, hospital consolidation and mergers, and
legislation and regulations that threaten to compromise the delivery of
quality cancer care. The website maintains a valuable list of links for
clinicians and patients.
Canadian
Cancer Organizations and Information by Cancer Site (Type)
This authoritative list of Canadian organizations is maintained by Christine Marton of the
University of Toronto.
FDA Office of Hematology Oncology Products (OHOP)
This office has links to product approvals, presentations, and contact lists.
International Agency for Research on Cancer
(IARC)
The IARC is involved in both epidemiological and
laboratory research and disseminates scientific information through
publications, meetings, courses, and fellowships.
National Cancer Institute
The National Cancer Institute (NCI) is a component of the National Institutes of
Health (NIH). NCI coordinates the National Cancer Program, which
conducts and supports research, training, and health information
dissemination.
NCI Research Resources
This page has over 100 key resources for categories such as family registries,
genomics, scientific computing and specimen resources.
Oncolink
OncoLink was founded in 1994 by University of Pennsylvania cancer specialists with a mission to help cancer patients,
families, health care professionals and the general public get accurate
cancer-related information at no charge. OncoLink contains comprehensive
information about specific types of cancer, updates on cancer treatments and
news about research advances.
Oncology Nursing Society
The Oncology Nursing Society (ONS) is a professional organization of more than 32,000 registered
nurses and other healthcare providers dedicated to excellence in patient
care, education, research, and administration in oncology nursing.
Society of Surgical Oncology
The Society of Surgical Oncology is a professional association for surgical oncologists and non-physician
healthcare providers involved in oncologic patient care. The site has links
to career information, educational opportunities, and research resources.
Union for International Cancer Control (UICC)
The world's largest independent, non-profit, non-governmental
association of cancer-fighting organizations, UICC brings together a wide
range of organizations, including voluntary cancer societies, research and
treatment centres, public health authorities, patient support networks and
advocacy groups.
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Editor: Mark Vrabel, MLS, AHIP, ELS
Oncology Nursing Society
Pittsburgh, PA
American Society of Clinical Oncology (ASCO) Cancer News and Meetings
News releases, expert perspectives on important developments in cancer, information about special ASCO symposia, annual meetings and more.
Cancer Letter
The Cancer Letter was founded in 1973 by journalist Jerry D. Boyd, and in 1977, the company founded The Clinical Cancer Letter, a monthly newsletter on cancer clinical trials.
In 1986, The Cancer Letter added a monthly business section, now called Business & Regulatory Report. The mission of
The Cancer Letter Inc. publications is to report on current and controversial topics in oncology. Company policy
doesn't allow the editors to hold individual stock positions in healthcare, pharmaceutical,
or biotechnology companies. The editors are members of the Society of Professional Journalists
and the Association of Health Care Journalists. Follow on Twitter at http://twitter.com/TheCancerLetter
Cancer Treatment News
Provided by CancerConsultants.com
Google News Search
A customized search of Google News using the term "cancer".
NCI Recent News Releases
Provided by the National Cancer Institute.
New Cancer Drug Approvals/FDA Updates
Hematology/Oncology (Cancer) Drug Approvals & Safety Notifications from the FDA.
Cancer Awareness Months
Medscape.com Hematology-Oncology News
Provided by Medscape.com and WebMD.
Oncolink's Cancer News
Provided by the Abramson Cancer Center at the University of Pennsylvania.
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Editor: Frank Davis, MSLS, AHIP
University of Kentucky Medical Center Library
Lexington, KY
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Editor: Frank Davis, MSLS, AHIP
University of Kentucky Medical Center Library
Lexington, KY
American Society of
Clinical Oncology Practice Guidelines
Guidelines can address specific clinical situations (disease-oriented) or
use of approved medical products, procedures, or tests (modality-oriented).
Using the best available evidence, ASCO’s expert panels identify and develop
practice recommendations for specific areas of cancer care that would
benefit from the availability of practice guidelines.
European Society for Medical Oncology (ESMO): Clinical Practice Guidelines
The ESMO Clinical Practice Guidelines (CPG) are intended to provide the user with a set of recommendations for the best standards of cancer care, based on the findings of evidence-based medicine. Each CPG includes information on the incidence of the malignancy, diagnostic criteria, staging of disease and risk assessment, treatment plans and follow-up..
National Comprehensive Cancer Network (NCCN): Guidelines & Clincal Resources
This alliance of 21 major cancer centers maintains a good collection of guidelines, clinical trials, and drug information. Over the past 15 years, NCCN has developed an integrated suite of tools to improve the quality of cancer care. The NCCN Clinical Practice Guidelines document evidence-based, consensus-driven management to ensure that all patients receive preventive, diagnostic, treatment, and supportive services that are most likely to lead to optimal outcomes. Creation of a free personal account is required to access some of the information.
National Guideline Clearinghouse
This resource contains an interdisciplinary compilation of
evidence-based clinical guidelines. The site is an initiative of the
Agency for Healthcare Research and Quality (AHRQ), U.S. Department of Health
and Human Services.
PDQ (Physician's Desk
Query)
National Cancer Institute’s comprehensive cancer database. It contains
peer-reviewed summaries on cancer treatment, screening, prevention,
genetics, and supportive care, and complementary and alternative medicine; a
registry of more than 4,000 open and 15,000 closed cancer clinical trials
from around the world; and directories of physicians, professionals who
provide genetics services, and organizations that provide cancer care.
PubMed:
Cancer Subset
Limits hotlink (below search screen) can be selected and
Publication Types can be set to Practice Guideline. Key
words can then be typed and search results will be MEDLINE journal citations
identified as Practice Guidelines.
Society of Surgical Oncology: Practice and Policy
The site maintains links to Evidence-Based Practice Guidelines and Expert Consensus Statements.
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Editor: Frank Davis, MSLS, AHIP
University of Kentucky Medical Center Library
Lexington, KY
Cancer Statistics
Provided by the American Cancer Society
SEER (Statistics, Epidemiology and End Results)
The Surveillance, Epidemiology, and End Results (SEER) Program, maintained
at National Cancer Institute, is an authoritative source of information on
cancer incidence and survival in the United States.
NCI Annual Fact Book
This report provides a summary of the distribution of the Fiscal Year 2010 budget among the various National Cancer Institute (NCI) research programs and funding mechanisms, funding policies influencing grant awards, and comparisons with prior year allocations. Additional information is also available for earlier years.
National Cancer Data Base (NCDB)
NCDB is a nationwide, facility-based, oncology data set that currently
captures 75% of all newly diagnosed cancer cases in the United States
annually. Data collected include patient characteristics, tumor
staging and histology characteristics, type of first course treatment
administered, disease recurrence, and survival information. The site is the
result of a partnership between American College of Surgeons and National
Cancer Society.
CANCERMondial
This website provides access to information on the occurrence of cancer
world-wide compiled by the Descriptive Epidemiology Group (DEP) of
the International Agency for Research on Cancer (IARC).
National Center for Health Statistics: Cancer
This page, from a CDC agency, has links to a variety of government
reports containing cancer information, usually within the context of a wider
subject area. Note: When searching full-text of the reports, the term "neoplasms" often brings more results than using the
term "cancer".
National Program of Cancer Registries (NPCR)
This Centers for Disease Control site contains data collected by local cancer
registries that enable public health professionals to understand and address the cancer burden more effectively.
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Editor: Grace Gmeindl, MLIS
West Virginia University Health Sciences Library
Morgantown, WV
CAM-Cancer
The aims of CAM-Cancer project are to build a European authoritative network
around CAM in cancer with an international panel of experts in CAM research
and/or in cancer care with privileged contacts with cancer organizations.
The project’s main achievement will be to prepare and disseminate suitable
evidence based information for health professionals in order to help them to
inform their patients.
NCCAM's Cancer Prevention and Treatment
The National Center for Complementary and Alternative Medicine (NCCAM) is the Federal Government's
(NIH's) lead agency for scientific research on the diverse medical and health care systems, practices,
and products that are not generally considered part of conventional medicine.
Office of Cancer Complementary & Alternative Medicine
This National Cancer Institute unit's goal is to increase the amount of
high-quality cancer research and information about the use of complementary
and alternative modalities.
Pharmacological and Biological Treatment
American Cancer Society page lists evidence-based overviews, with reference,
for non-traditional therapies.
Sloan Kettering - About
Herbs, Botanicals, and Other Products
This site provides objective information for oncologists and healthcare
professionals, including a clinical summary for each agent and details about
constituents, adverse effects, interactions, and potential benefits or
problems. Evaluations of alternative or unproved cancer therapies, as well
as products for sexual dysfunction are included.
Complementary/Alternative Therapies Websites
Links to external websites which have been compiled and evaluated by BC Cancer Agency librarians.
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Editor: Grace Gmeindl, MLIS
West Virginia University Health Sciences Library
Morgantown, WV
FDA Approved Oncology
Drugs
The site contains the list of FDA-approved oncology drugs and regulatory
information.
Approved Drug Products With Therapeutic
Equivalence Evaluations - Electronic Orange Book
The FDA produces this book which contains products that have been approved
under section 505 of the Federal Food, Drug, and Cosmetic Act. It can be
searched by active ingredient, proprietary name, or application holder.
What's
New from the FDA's Office of Oncology Drug Products
NCI Drug Dictionary
The site contains technical definitions and synonyms for more than 500
agents that are being used in the treatment of patients with cancer or
cancer-related conditions.
Pharmacological and Biological Treatment
American Cancer Society web page listing non-traditional therapies with
structured overviews and references.
RxList
This commercial site can be searched by drug name, plus Advanced Search
options for keyword, interaction, or side effects.
Cancer Care
Ontario Drug Formulary
CCO Drug Formulary is an online Cancer Drug and Regimen information only
website, reflecting the choices of chemotherapy used across
Ontario. Resources include monographs for healthcare professionals; drug
regimens by disease site and for supportive care and symptom control; plus
ancillary information.
Center for Biologics Evaluation and
Research (CBER)
FDA site contains information on research projects and product
approval. Not all links are specific to cancer or oncology.
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No direct recommendation or sponsorship by MLA Cancer Section or MLA of these listed
web resources is implied. The resources referenced here are intended to
provide general information for you. Some resources will contain information
that is the opinion of the author and is not necessarily that of your own
healthcare providers. Please consult your healthcare provider for individual
information on your specific condition.
The Medical Library Association (MLA) and MLA
Cancer Librarians Section endorse the Criteria for
Assessing the Quality of Health Information on the Internet of the Health Summit Working Group.
These sites have been reviewed using HSWG guidelines. These criteria include: credibility,
sponsorship/authorship, content, audience, currency, disclosure, purpose, links, design,
interactivity, and caveats. These sites met this criteria as of the published date of this web page.
All sites on this page have been reviewed by members of the Cancer Librarians Section of MLA.
Comments and suggestions should be sent to the section Web Editor for review by the selection committee.
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