|
The charge of the MLA Cancer Librarians Recommended Web Sites project
is to provide medical librarians with a resource to use in their daily practice and teaching.
Secondly, it is our contribution to the Medical Library Association so that the headquarters
staff can refer oncology professionals to a list of quality health web sites.
Our goal is to have a limited number of resources that meet the quality criteria for currency, credibility,
content, audience, etc., as described on our website. The Cancer Librarians Section has a guide
for Evaluating Websites that contains
good tips for assessing health information on the Internet.
Editor: Jan T. Orick, MLIS, AHIP
St Jude Children's Research Hospital, Biomedical Library
Memphis, TN
American Society of Pediatric Hematology/Oncology
This web site is a forum for communication about the field of pediatric hematology/oncology and ASPHO's programs for its
members. It also serves patients and families by providing a source of current peer-reviewed scientific and clinical research and links to aid in
finding other related information through the Internet.
CureSearch
This site contains comprehensive coverage for all aspects of childhood cancer for
health professionals, patients, and families. CureSearch is a united effort
of the Children's Oncology
Group (COG) and the National Childhood Cancer Foundation (NCCF).
Childhood
Cancer Guides
This is a not-for-profit group of individuals.
The educational website that shares portions of the books, provides
referrals to helpful resources, and additional links. Content is from the
books on childhood cancer and leukemia co-authored by Nancy Keene.
St. Jude's Children's Research Hospital
This web site contains authoritative information about the treatment of
pediatric cancer and rare diseases such as sickle cell anemia. Information
is provided for patients, families, clinicians, and basic scientist. The
site provides definitions of different types of pediatric cancer, medical
terminology and access to a drug database. Information is also provided for
adolescents and survivors of pediatric cancers.
Starlight Starbright
This site brings together experts from pediatric health care, technology,
and entertainment to create programs that educate, entertain and inspire
seriously ill children. The website provides access for children and teens
to find friends online, learn more about a disease, or just spend time
together with their family, the programs help children and families deal
with the challenges of being sick. The website provides online animated
stories to explain about specific illnesses and procedures.
Return to Top of Page
Editor: Tanya Smith, MPH, CHES
University of Utah, Huntsman Cancer Institute
Salt Lake City, UT
National Cancer Institute (NCI): Clinical Trials
This is a comprehensive resource from the NCI that provides links to educational materials
describing what clinical trials are and why they are important, a searchable database for current
cancer clinical trials that are recruiting patients, and a link to summaries of noteworthy results
from completed clinical trials.
Coalition of Cancer Cooperative Groups
This organization provides information to improve public and patient awareness of clinical trials.
The site provides access to TrialCheck®, a searchable database for current cancer clinical trials.
TrialCheck® contains more than 4,000 cancer clinical trials from Cooperative Groups, National
Cancer Institute (NCI), academic centers, and pharmaceutical and biotech companies, and it is
updated on a daily basis.
ClinicalTrials.gov
This National Library of Medicine site provides regularly updated information about
federally and privately supported clinical research for a variety of diseases and
conditions taking place in the United States and in 153 countries.
CenterWatch
This commercial site contains a listing of more than 41,000 industry and government-sponsored clinical trials (not all
specific to Oncology) as well as new drug therapies recently approved by the
FDA.
Clinical Trials Group, National Cancer Institute of Canada (NCIC CTG)
The official web site of the National Cancer Institute of Canada's Clinical Trials Group.
It provides information about their programs.
Return to Top of Page
Editor: Gail Y. Hendler, MLS, AHIP
Hirsh Health Sciences Library, Tufts University
Boston, MA
American Cancer Society
This comprehensive website offers a wealth of information in English and
Spanish to patients/survivors, their families and caregivers, and the
public. Noteworthy for its growing collection of various Asian language
documents, and for links to statistics; a cancer drug database; support
resources; NCCN patient treatment guidelines; treatment center locator, and
treatment decision tools meant to help patients make better informed
healthcare decisions.
Ask NOAH About: Cancer
For over a decade. New York Online to Health (NOAH) has been improving the
public’s health by providing bilingual (English and Spanish) full-text
online information that is unbiased, timely and relevant. Here, cancer
information includes cancer by type as well as information on sexuality,
support, pregnancy, fatigue, cancer genetics and links to the Healthology
Video Library.
Cancerbackup
Staffed by cancer nurses, the largest specialist cancer information service
in Europe is located in the UK and provides high-quality, online patient
information about precancerous conditions; cancer background information and
information by type; treatments ranging biological, hormonal, supportive and
complementary therapies. The site also links to a European clinical trials
database, and a searchable list of 1,000 questions and answers about cancer.
Cancer Care
CancerCare’s mission is provide free professional support services to anyone diagnosed with cancer, their
friends, relatives and caregivers. The CancerCare website provides links to
the “Reading Room” that contains PDF brochures discussing various cancer
types and their medical, emotional and practical concerns in English and
Spanish. An online community message board is available as well as links to
information about support groups and monthly schedules for telephone
education sessions.
Cancer Risk Questionnaire – Harvard Center for Cancer Prevention
The Harvard Center for Cancer Prevention has created an interactive tool
that allows users to estimate risk for 12 different cancer types and offers
personalized tips on how to best prevent these cancers.
CancerQuest
Emory University has done an outstanding job in explaining tumor biology to patients,
family and other interested users. Vido and text clearly present complex concepts
with information translated into Spanish, Chinese and Russian.
CancerSymptoms.org
The Oncology Nursing Society website helps patients and caregivers learn
about and manage the symptoms of ten common cancer treatment symptoms:
anorexia, cognitive dysfunction, depression, dyspnea, fatigue, hormonal
disturbances, neutropenia, pain, peripheral neuropathy, sexual dysfunction
and supplies links to resources supplying information about other cancer
symptoms.
Corporate Angel Network
Thanks to 530 American corporations, cancer patients can receive free
flights to and from approved cancer treatment facilities anywhere in the
United States on unused seats on corporate jets.
Inside Cancer
This website is a guide for the layman about the biology of cancer; how
cancer occurs, evolves and how it can be treated. Curated by the Cold
Spring Harbor National Laboratory, experts in the field combine with clear
graphics and text to explain cancer on the molecular level.
Medlineplus
The National Library of Medicine(NLM) offers patients and the public links
authoritative, full-text information from the NLM, the National Institutes
of Health (NIH), and other government agencies and select health-related
organizations. In addition to a comprehensive collection of cancer
information, special features include “easy to read” documents, low-vision
documents, and a selection of interactive health tutorials on a variety of
cancer topics.
National Cancer Institute's Cancer.gov
In addition to the PDQ cancer information summaries for patients, this
website contains links to statistics, the Dictionary of Cancer Terms, NCI
Drug Dictionary, clinical trials search, Cancer Genetics Service directory,
and the “Understanding Cancer” series that enhances learning about the
science behind the medicine.
National Cancer Institute's Cancer.gov en Espanol
A new Spanish language Web site provides Hispanic/Latino communities with
accurate and up-to-date cancer information. Visitors can learn about different
types of cancer, treatments, detection and prevention as well as read about the
experiences of Latino cancer survivors.
Patient Advocate Foundation
This non-profit organization was established in 1996 to assist cancer
patients resolve insurance, debt, employment and discrimination issues due
to cancer diagnosis. The organization actively “seeks to provide avenues of
access to insurance funding for evolving cancer therapies” and acts as a
liaison between patients and their insurers, creditors and employers.
People Living with Cancer
The American Society of Clinical Oncology (ASCO) offers peer-reviewed
information for patients, families and caregivers. Coverage includes over
85 types of cancer, basic cancer information, support, coping, advocacy, and
information about special populations. Special and notable features on this
website include a Medical Illustrations Gallery of common cancer sites
organized by cancer type; ASCO Patient Guides that comprise a growing list
of well-written and up-to-date documents on a variety of discrete subjects
such as, Understanding Tumor Markers for Breast and Colon Cancer, and
a monthly “Ask the Expert” forum meant to invite patients, families, and the
public to ask leading cancer experts questions via an online chat forum.
Return to Top of Page
Editor: Frank Davis, MSLS, AHIP
University of Kentucky Medical Center Library
Lexington, KY
American Cancer Society
The ACS site has information for both healthcare professionals and patients
that includes disease overviews, treatment options, prevention and coping
strategies, and news.
American Society of Clinical Oncology
ASCO membership is comprised of clinical oncologists from all oncology disciplines and sub-specialties. The web site
has information for practice guidelines, policy statements, career
development, and news.
American Society for Therapeutic Radiology and Oncology (ASTRO)
The site has links to resources for research, economics, government issues,
and patient information.
Association of Community
Cancer Centers
The ACCC helps oncology professionals adapt to the complex challenges of program
management, cuts in reimbursement, hospital consolidation and mergers, and
legislation and regulations that threaten to compromise the delivery of
quality cancer care. The website maintains a valuable list of links for
clinicians and patients.
Canadian
Cancer Organizations and Information by Cancer Site (Type)
This authoritative list of Canadian organizations is maintained by Christine Marton of the
University of Toronto.
FDA Oncology Tools
This site contains a variety of information related to cancer and approved cancer
drug therapies. Rather than grouping all drug product information together, this
web page is a first effort at pulling together information by disease category which we hope
will make this information easier to find and use.
International Agency for Research on Cancer
(IARC)
The IARC is involved in both epidemiological and
laboratory research and disseminates scientific information through
publications, meetings, courses, and fellowships.
International Union Against Cancer
The world's largest independent, non-profit, non-governmental
association of cancer-fighting organizations, UICC brings together a wide
range of organizations, including voluntary cancer societies, research and
treatment centres, public health authorities, patient support networks and
advocacy groups.
National Cancer Institute
The National Cancer Institute (NCI) is a component of the National Institutes of
Health (NIH). NCI coordinates the National Cancer Program, which
conducts and supports research, training, and health information
dissemination.
NCI Research Resources
This page has over 100 key resources for categories such as family registries,
genomics, scientific computing and specimen resources.
Oncolink
OncoLink was founded in 1994 by University of Pennsylvania cancer specialists with a mission to help cancer patients,
families, health care professionals and the general public get accurate
cancer-related information at no charge. OncoLink contains comprehensive
information about specific types of cancer, updates on cancer treatments and
news about research advances.
Oncology Nursing Society
The Oncology Nursing Society (ONS) is a professional organization of more than 32,000 registered
nurses and other healthcare providers dedicated to excellence in patient
care, education, research, and administration in oncology nursing.
Society of Surgical Oncology
The Society of Surgical Oncology is a professional association for surgical oncologists and non-physician
healthcare providers involved in oncologic patient care. The site has links
to career information, educational opportunities, and research resources.
Return to Top of Page
Editor: Mark Vrabel, MLS, AHIP
Oncology Nursing Society
Pittsburgh, PA
ASCO
Annual Meeting – Cancer News for Patients
News for patients about the cancer care and treatment advances announced during the American Society of Clinical Oncology's (ASCO) Annual Meeting each year.
Cancer News
Updates provided by CancerSource.com.
Cancer Treatment News
Provided by CancerConsultants.com
Google News search for "Cancer"
A customized search of Google News using the term "cancer".
NCI Recent News Releases
Provided by the National Cancer Institute.
New Cancer Drug Approvals/FDA Updates
Provided by the Oncology Nursing Society.
National Health Observances
This planning guide developed by the
National Health Information Center lists national health observances,
along with the sponsoring organizations and information about supporting
materials that will be available.
Medscape.com Hematology-Oncology News
Provided by Medscape.com and WebMD.
Oncolink's Cancer News
Provided by the Abramson Cancer Center at the University of Pennsylvania.
Return to Top of Page
Editor: Gail Y. Hendler, MLS, AHIP
Hirsh Health Sciences Library, Tufts University
Boston, MA
Return to Top of Page
Editor: Frank Davis, MSLS, AHIP
University of Kentucky Medical Center Library
Lexington, KY
American Society of
Clinical Oncology Practice Guidelines
Guidelines can address specific clinical situations (disease-oriented) or
use of approved medical products, procedures, or tests (modality-oriented).
Using the best available evidence, ASCO’s expert panels identify and develop
practice recommendations for specific areas of cancer care that would
benefit from the availability of practice guidelines.
European
Society for Medical Oncology: Clinical Recommendations
This site contains recommendations from a 2005 supplement of
Annals of Oncology.
National Comprehensive Cancer Network
This alliance of 20 major cancer centers maintains a good collection of
guidelines, clinical trials, and drug information. Creation of a free
personal account is required to access some of the information.
National Guideline Clearinghouse
This resource contains an interdisciplinary compilation of
evidence-based clinical guidelines. The site is an initiative of the
Agency for Healthcare Research and Quality (AHRQ), U.S. Department of Health
and Human Services.
PDQ (Physician's Desk
Query)
National Cancer Institute’s comprehensive cancer database. It contains
peer-reviewed summaries on cancer treatment, screening, prevention,
genetics, and supportive care, and complementary and alternative medicine; a
registry of more than 4,000 open and 15,000 closed cancer clinical trials
from around the world; and directories of physicians, professionals who
provide genetics services, and organizations that provide cancer care.
PubMed:
Cancer Subset
Limits hotlink (below search screen) can be selected and
Publication Types can be set to Practice Guideline. Key
words can then be typed and search results will be MEDLINE journal citations
identified as Practice Guidelines.
Society of Surgical
Oncology Research and Practice Resources
The site maintains links to summary documents and relevant clinical trials.
Return to Top of Page
Editor: Frank Davis, MSLS, AHIP
University of Kentucky Medical Center Library
Lexington, KY
Cancer Statistics
Provided by the American Cancer Society
SEER (Statistics, Epidemiology and End Results)
The Surveillance, Epidemiology, and End Results (SEER) Program, maintained
at National Cancer Institute, is an authoritative source of information on
cancer incidence and survival in the United States.
NCI Fact Book, 2006
This annual publication has incident and mortality rates, plus information
about NCI funding and organizational structure.
National Cancer Data Base (NCDB)
NCDB is a nationwide, facility-based, oncology data set that currently
captures 75% of all newly diagnosed cancer cases in the United States
annually. Data collected include patient characteristics, tumor
staging and histology characteristics, type of first course treatment
administered, disease recurrence, and survival information. The site is the
result of a partnership between American College of Surgeons and National
Cancer Society.
CANCERMondial
This website provides access to information on the occurrence of cancer
world-wide compiled by the Descriptive Epidemiology Group (DEP) of
the International Agency for Research on Cancer (IARC).
National Center for Health Statistics: Cancer
This page, from a CDC agency, has links to a variety of government
reports containing cancer information, usually within the context of a wider
subject area. Note: When searching full-text of the reports, the term "neoplasms" often brings more results than using the
term "cancer".
Return to Top of Page
Editor: Frank Davis, MSLS, AHIP
University of Kentucky Medical Center Library
Lexington, KY
CAM-Cancer
The aims of CAM-Cancer project are to build a European authoritative network
around CAM in cancer with an international panel of experts in CAM research
and/or in cancer care with privileged contacts with cancer organizations.
The project’s main achievement will be to prepare and disseminate suitable
evidence based information for health professionals in order to help them to
inform their patients.
Office of Cancer Complementary & Alternative Medicine
This National Cancer Institute unit's goal is to increase the amount of
high-quality cancer research and information about the use of complementary
and alternative modalities.
Pharmacological and Biological Treatment
American Cancer Society page lists evidence-based overviews, with reference,
for non-traditional therapies.
Sloan Kettering - About
Herbs, Botanicals, and Other Products
This site provides objective information for oncologists and healthcare
professionals, including a clinical summary for each agent and details about
constituents, adverse effects, interactions, and potential benefits or
problems. Evaluations of alternative or unproved cancer therapies, as well
as products for sexual dysfunction are included.
Unconventional Therapies
British Columbia Cancer Agency maintains this web site. The pages
are designed to provide objective information for patients and their
families, relating to alternative and complementary therapies. Most of the
information consists of direct quotations from the medical, peer-reviewed
book and journal literature.
Return to Top of Page
Editor: Frank Davis, MSLS, AHIP
University of Kentucky Medical Center Library
Lexington, KY
FDA Approved Oncology
Drugs
The site contains the list of FDA-approved oncology drugs and regulatory
information. Also lists assessment tools for staging, performance status,
toxicity, and human and animal dosage calculators.
Approved Drug Products With Therapeutic
Equivalence Evaluations - Electronic Orange Book
The FDA produces this book which contains products that have been approved
under section 505 of the Federal Food, Drug, and Cosmetic Act. It can be
searched by active ingredient, proprietary name, or application holder.
NCI Drug Dictionary
The site contains technical definitions and synonyms for more than 500
agents that are being used in the treatment of patients with cancer or
cancer-related conditions.
Pharmacological and Biological Treatment
American Cancer Society web page listing non-traditional therapies with
structured overviews and references.
RxList
This commercial site can be searched by drug name, plus Advanced Search
options for keyword, interaction, or side effects.
Cancer Care
Ontario Drug Formulary
CCO Drug Formulary is an online Cancer Drug and Regimen information only
website, reflecting the choices of chemotherapy used across
Ontario. Resources include monographs for healthcare professionals; drug
regimens by disease site and for supportive care and symptom control; plus
ancillary information.
Center for Biologics Evaluation and
Research (CBER)
FDA site contains information on research projects and product
approval. Not all links are specific to cancer or oncology.
Return to Top of Page
No direct recommendation or sponsorship by MLA Cancer Section or MLA of these listed
web resources is implied. The resources referenced here are intended to
provide general information for you. Some resources will contain information
that is the opinion of the author and is not necessarily that of your own
healthcare providers. Please consult your healthcare provider for individual
information on your specific condition.
The Medical Library Association (MLA) and MLA
Cancer Librarians Section endorse the Criteria for
Assessing the Quality of Health Information on the Internet of the
Health Summit Working Group.
These sites have been reviewed using HSWG guidelines. These criteria include: credibility,
sponsorship/authorship, content, audience, currency, disclosure, purpose, links, design,
interactivity, and caveats. These sites met this criteria as of the published date of this web page.
All sites on this page have been reviewed by members of the Cancer Librarians Section of MLA.
Comments and suggestions should be sent to the section Web Editor for review by the selection committee.
|
