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The charge of the MLA Cancer Librarians Recommended Web Sites project is to provide medical librarians with a resource to use in their daily practice and teaching. Secondly, it is our contribution to the Medical Library Association so that the headquarters staff can refer oncology professionals to a list of quality health web sites.

Our goal is to have a limited number of resources that meet the quality criteria for currency, credibility, content, audience, etc., as described on our website. The Cancer Librarians Section has a guide for Evaluating Websites that contains good tips for assessing health information on the Internet.


Cancer Resources for Special Population Groups
- Children & Adolescents

Editor: Jan T. Orick, MLIS, AHIP
St Jude Children's Research Hospital, Biomedical Library
Memphis, TN

American Cancer Society: Cancer in Children
The American Cancer Society website provides a Detailed Guide and information on specific forms of childhood cancer. The website includes information about diagnosis, treatment, coping and support, and surviving childhood cancer.

American Childhood Cancer Organization (ACCO)
Provides information on cancer; insurance and legal guidance to families of children with cancer and adult survivors of childhood cancer; information on comprehensive survivor follow-up care; late-effects of cancer treatment, and second malignancies; and books for children, caregivers, and teachers. Also offers parent support groups in most states.

American Society of Pediatric Hematology/Oncology
This web site is a forum for communication about the field of pediatric hematology/oncology and ASPHO's programs for its members. It also serves patients and families by providing a source of current peer-reviewed scientific and clinical research and links to aid in finding other related information through the Internet.

Cancer in Children - MedlinePlus
MedlinePlus provides an excellent start to locating information about childhood and adolescent cancer including links to diagnosis, treatment, news, clinical trials, research, dictionaries, directories, and videos.

Childhood Cancer Guides
This is a not-for-profit group of individuals. The educational website that shares portions of the books, provides referrals to helpful resources, and additional links. Content is from the books on childhood cancer and leukemia co-authored by Nancy Keene.

Childhood Cancers
The National Cancer Institute’s Factsheet provides information and statistics about childhood cancers.

CureSearch
This site contains comprehensive coverage for all aspects of childhood cancer for health professionals, patients, and families. CureSearch is a united effort of the Children's Oncology Group (COG) and the National Childhood Cancer Foundation (NCCF).

KidsHealth Cancer Center
Sponsored by Nemours, KidsHealth is the most-visited site on the Web for information about health, behavior, and development from before birth through the teen years. All KidsHealth articles, animations, games, and other content go through a rigorous medical review by pediatricians and other medical experts. Ongoing, scheduled medical reviews ensure the information is as up-to-date as possible. The KidsHealth Cancer Center contains information tailored to Parents, Kids and Teens.

Starlight Starbright
This site brings together experts from pediatric health care, technology, and entertainment to create programs that educate, entertain and inspire seriously ill children. The website provides access for children and teens to find friends online, learn more about a disease, or just spend time together with their family, the programs help children and families deal with the challenges of being sick. The website provides online animated stories to explain about specific illnesses and procedures.

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Clinical Trials

Editor: Lara Niederhauser, CHES
University of Utah, Huntsman Cancer Institute
Salt Lake City, UT

National Cancer Institute (NCI): Clinical Trials
This is a comprehensive resource from the NCI that provides links to educational materials describing what clinical trials are and why they are important, a searchable database for current cancer clinical trials that are recruiting patients, and a link to summaries of noteworthy results from completed clinical trials.

ClinicalTrials.gov
This National Library of Medicine site provides regularly updated information about federally and privately supported clinical research for a variety of diseases and conditions taking place in the United States and in 186 countries.
Advanced searches of the site allow visitors to refine results to focus on Cancer and other Neoplasms or Blood and Lymph Conditions.

CenterWatch
This commercial site contains a listing of thousands of industry-sponsored clinical trials (not all specific to Oncology) as well as new drug therapies recently approved by the FDA.

Clinical Trials Group, National Cancer Institute of Canada (NCIC CTG)
The official web site of the National Cancer Institute of Canada's Clinical Trials Group. It provides information about their programs.

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Consumer & Patient Resources

Editor: Gail Y. Hendler, MLS, AHIP
Loyola University Chicago Health Sciences Library
Maywood, IL

American Cancer Society
This comprehensive website offers a wealth of information in English and Spanish to patients/survivors, their families and caregivers, and the public.  Noteworthy for its growing collection of various Asian language documents, and for links to statistics; a cancer drug database; support resources; NCCN patient treatment guidelines; treatment center locator, and treatment decision tools meant to help patients make better informed healthcare decisions.

CancerBackup
Staffed by cancer nurses, the largest specialist cancer information service in Europe is located in the UK and provides high-quality, online patient information about precancerous conditions; cancer background information and information by type; treatments ranging biological, hormonal, supportive and complementary therapies.  The site also links to a European clinical trials database, and a searchable list of 1,000 questions and answers about cancer.

CancerCare
CancerCare’s mission is to provide free professional support services to anyone diagnosed with cancer, their friends, relatives and caregivers.  The CancerCare website provides links to the “Reading Room” that contains PDF brochures discussing various cancer types and their medical, emotional and practical concerns in English and Spanish.  An online community message board is available as well as links to information about support groups and monthly schedules for telephone education sessions.

Cancer in Multiple Languages - MedlinePlus

Cancer Chemotherapy in Multiple Languages - MedlinePlus

Living with Cancer in Multiple Languages - MedlinePlus

Cancer.Net
The American Society of Clinical Oncology (ASCO) offers peer-reviewed information for patients, families and caregivers.  Coverage includes over 85 types of cancer, basic cancer information, support, coping, advocacy, and information about special populations.  Special and notable features on this website include a Medical Illustrations Gallery of common cancer sites organized by cancer type; ASCO Patient Guides that comprise a growing list of well-written and up-to-date documents on a variety of discrete subjects such as, Understanding Tumor Markers for Breast and Colon Cancer, and a monthly “Ask the Expert” forum meant to invite patients, families, and the public to ask leading cancer experts questions via an online chat forum.

CancerQuest
Emory University has done an outstanding job in explaining tumor biology to patients, family and other interested users. Vido and text clearly present complex concepts with information translated into Spanish, Chinese and Russian.

Corporate Angel Network
Thanks to 530 American corporations, cancer patients can receive free flights to and from approved cancer treatment facilities anywhere in the United States on unused seats on corporate jets.

Family Caregiver Alliance
Information in multiple languages about services and support for caregivers and families living with chronic illness.

Inside Cancer
This website is a guide for the layman about the biology of cancer; how cancer occurs, evolves and how it can be treated. Curated by the Cold Spring Harbor National Laboratory, experts in the field combine with clear graphics and text to explain cancer on the molecular level.

Journey Forward
The Oncology Nursing Society offers patients survivorship planning tools such as care plans and a medical history tool to facilitate the next phase forward.

Medlineplus
The National Library of Medicine(NLM) offers patients and the public links authoritative, full-text information from the NLM, the National Institutes of Health (NIH), and other government agencies and select health-related organizations.  In addition to a comprehensive collection of cancer information, special features include “easy to read” documents, low-vision documents, and a selection of interactive health tutorials on a variety of cancer topics.

National Cancer Institute's Cancer.gov
In addition to the PDQ cancer information summaries for patients, this website contains links to statistics, the Dictionary of Cancer Terms, NCI Drug Dictionary, clinical trials search, Cancer Genetics Service directory, and the “Understanding Cancer” series that enhances learning about the science behind the medicine.

National Cancer Institute's Cancer.gov en Espanol
A new Spanish language Web site provides Hispanic/Latino communities with accurate and up-to-date cancer information. Visitors can learn about different types of cancer, treatments, detection and prevention as well as read about the experiences of Latino cancer survivors.

Patient Advocate Foundation
This non-profit organization was established in 1996 to assist cancer patients resolve insurance, debt, employment and discrimination issues due to cancer diagnosis.  The organization actively “seeks to provide avenues of access to insurance funding for evolving cancer therapies” and acts as a liaison between patients and their insurers, creditors and employers.

ThyCa: Thyroid Cancer Survivors' Association, Inc.
ThyCa: Thyroid Cancer Survivors' Association, Inc. is a non-profit 501(c)(3) organization of thyroid cancer survivors, family members, and health care professionals. It is dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. They sponsor Thyroid Cancer Awareness Month, year-round awareness activities, and thyroid cancer research fund raising and research grants.

Your Disease Risk
Barnes-Jewish Hospital and Washington University School of Medicine maintain this interactive tool that allows users to estimate risk for 12 different cancer types and offers personalized tips on how to best prevent these cancers.

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Government & Organization Web Sites

Editor: Frank Davis, MSLS, AHIP
University of Kentucky Medical Center Library
Lexington, KY

American Cancer Society
The ACS site has information for both healthcare professionals and patients that includes disease overviews, treatment options, prevention and coping strategies, and news.

American Society of Clinical Oncology
ASCO membership is comprised of clinical oncologists from all oncology disciplines and sub-specialties. The web site has information for practice guidelines, policy statements, career development, and news.

American Society for Therapeutic Radiology and Oncology (ASTRO)
The site has links to resources for research, economics, government issues, and patient information.

Association of Community Cancer Centers
The ACCC helps oncology professionals adapt to the complex challenges of program management, cuts in reimbursement, hospital consolidation and mergers, and legislation and regulations that threaten to compromise the delivery of quality cancer care. The website maintains a valuable list of links for clinicians and patients.

Canadian Cancer Organizations and Information by Cancer Site (Type)
This authoritative list of Canadian organizations is maintained by Christine Marton of the University of Toronto.

European Organisation for Research and Treatment of Cancer (EORTC)
The aims of EORTC are to develop, conduct, coordinate, and stimulate translational and clinical research in Europe to improve the management of cancer and related problems by increasing survival but also patient quality of life. Through translational and clinical research, EORTC offers an integrated approach to drug development, drug evaluation programs and medical practices.

FDA Office of Hematology Oncology Products (OHOP)
This office has links to product approvals, presentations, and contact lists.

International Agency for Research on Cancer (IARC)
The IARC is an agency of the World Health Organization. IARC is involved in both epidemiological and laboratory research and disseminates scientific information through publications, meetings, courses, and fellowships.

National Cancer Institute
The National Cancer Institute (NCI) is a component of the National Institutes of Health (NIH). NCI coordinates the National Cancer Program, which conducts and supports research, training, and health information dissemination.

NCI Research Resources This page has over 100 key resources for categories such as family registries, genomics, scientific computing and specimen resources.

Oncolink
OncoLink was founded in 1994 by University of Pennsylvania cancer specialists with a mission to help cancer patients, families, health care professionals and the general public get accurate cancer-related information at no charge. OncoLink contains comprehensive information about specific types of cancer, updates on cancer treatments and news about research advances.

Oncology Nursing Society
The Oncology Nursing Society (ONS) is a professional organization of more than 32,000 registered nurses and other healthcare providers dedicated to excellence in patient care, education, research, and administration in oncology nursing.

Society of Surgical Oncology
The Society of Surgical Oncology is a professional association for surgical oncologists and non-physician healthcare providers involved in oncologic patient care. The site has links to career information, educational opportunities, and research resources.

Union for International Cancer Control (UICC)
The world's largest independent, non-profit, non-governmental association of cancer-fighting organizations, UICC brings together a wide range of organizations, including voluntary cancer societies, research and treatment centres, public health authorities, patient support networks and advocacy groups.

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News & Current Awareness

Editor: Mark Vrabel, MLS, AHIP, ELS
Oncology Nursing Society
Pittsburgh, PA

American Society of Clinical Oncology (ASCO) Cancer News and Meetings
News releases, expert perspectives on important developments in cancer, information about special ASCO symposia, annual meetings and more.

Cancer Letter
The Cancer Letter was founded in 1973 by journalist Jerry D. Boyd, and in 1977, the company founded The Clinical Cancer Letter, a monthly newsletter on cancer clinical trials. In 1986, The Cancer Letter added a monthly business section, now called Business & Regulatory Report. The mission of The Cancer Letter Inc. publications is to report on current and controversial topics in oncology. Company policy doesn't allow the editors to hold individual stock positions in healthcare, pharmaceutical, or biotechnology companies. The editors are members of the Society of Professional Journalists and the Association of Health Care Journalists. Follow on Twitter at http://twitter.com/TheCancerLetter

Cancer Treatment News
Provided by CancerConsultants.com

Google News Search
A customized search of Google News using the term "cancer".

NCI Recent News Releases
Provided by the National Cancer Institute.

New Cancer Drug Approvals/FDA Updates
Hematology/Oncology (Cancer) Drug Approvals & Safety Notifications from the FDA.

Cancer Awareness Months

Medscape.com Hematology-Oncology News
Provided by Medscape.com and WebMD.

Oncolink's Cancer News
Provided by the Abramson Cancer Center at the University of Pennsylvania.

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Professional Society Meeting Abstracts

Editor: Frank Davis, MSLS, AHIP
University of Kentucky Medical Center Library
Lexington, KY

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Practice Guidelines & Treatment Overviews

Editor: Frank Davis, MSLS, AHIP
University of Kentucky Medical Center Library
Lexington, KY

American Society of Clinical Oncology Practice Guidelines
Guidelines can address specific clinical situations (disease-oriented) or use of approved medical products, procedures, or tests (modality-oriented). Using the best available evidence, ASCO’s expert panels identify and develop practice recommendations for specific areas of cancer care that would benefit from the availability of practice guidelines.

European Society for Medical Oncology (ESMO): Clinical Practice Guidelines
The ESMO Clinical Practice Guidelines (CPG) are intended to provide the user with a set of recommendations for the best standards of cancer care, based on the findings of evidence-based medicine. Each CPG includes information on the incidence of the malignancy, diagnostic criteria, staging of disease and risk assessment, treatment plans and follow-up..

National Comprehensive Cancer Network (NCCN): Guidelines & Clincal Resources
This alliance of 21 major cancer centers maintains a good collection of guidelines, clinical trials, and drug information. Over the past 15 years, NCCN has developed an integrated suite of tools to improve the quality of cancer care. The NCCN Clinical Practice Guidelines document evidence-based, consensus-driven management to ensure that all patients receive preventive, diagnostic, treatment, and supportive services that are most likely to lead to optimal outcomes. Creation of a free personal account is required to access some of the information.

National Guideline Clearinghouse
This resource contains an interdisciplinary compilation of  evidence-based clinical guidelines. The site is an initiative of the Agency for Healthcare Research and Quality (AHRQ), U.S. Department of Health and Human Services.

PDQ (Physician's Desk Query)
National Cancer Institute’s comprehensive cancer database. It contains summaries on a wide range of cancer topics; a registry of 8,000+ open and 19,000+ closed cancer clinical trials from around the world; and a directory of professionals who provide genetics services. PDQ also contains the NCI Dictionary of Cancer Terms, with definitions for 6,800+ cancer and medical terms, plus the NCI Drug Dictionary.

PubMed: Cancer Subset
Limits hotlink (below search screen) can be selected and Publication Types can be set to Practice Guideline.  Key words can then be typed and search results will be MEDLINE journal citations identified as Practice Guidelines.

Society of Surgical Oncology: Practice and Policy
The site maintains links to Evidence-Based Practice Guidelines and Expert Consensus Statements.

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Statistics & Epidemiology

Editor: Frank Davis, MSLS, AHIP
University of Kentucky Medical Center Library
Lexington, KY

Cancer Statistics
Provided by the American Cancer Society

SEER (Statistics, Epidemiology and End Results)
The Surveillance, Epidemiology, and End Results (SEER) Program, maintained at National Cancer Institute, is an authoritative source of information on cancer incidence and survival in the United States.

NCI Annual Fact Book
This report provides a summary of the distribution of the Fiscal Year 2012 budget among the various National Cancer Institute (NCI) research programs and funding mechanisms, funding policies influencing grant awards, and comparisons with prior year allocations. Additional information is also available for earlier years.

National Cancer Data Base (NCDB)
The National Cancer Data Base (NCDB), a joint program of the Commission on Cancer (CoC) of the American College of Surgeons (ACoS) and the American Cancer Society (ACS), is a nationwide oncology outcomes database. Some 70 percent of all newly diagnosed cases of cancer in the United States are captured at the institutional level and reported to the NCDB. The data is used to explore trends in cancer care, to create regional and state benchmarks for participating hospitals, and to serve as the basis for quality improvement.

CANCERMondial
This website provides access to information on the occurrence of cancer world-wide compiled by the Descriptive Epidemiology Group (DEP) of the International Agency for Research on Cancer (IARC).

National Center for Health Statistics: Cancer
This page, from a CDC agency, has links to a variety of government reports containing cancer information, usually within the context of a wider subject area. Note: When searching full-text of the reports, the term "neoplasms" often brings more results than using the term "cancer".

National Program of Cancer Registries (NPCR)
This Centers for Disease Control site contains data collected by local cancer registries that enable public health professionals to understand and address the cancer burden more effectively.

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Treatment Options - Alternative, Complementary, & Holistic Resources

Editor: Grace Gmeindl, MLIS
West Virginia University Health Sciences Library
Morgantown, WV

CAM-Cancer
The aims of CAM-Cancer project are to build a European authoritative network around CAM in cancer with an international panel of experts in CAM research and/or in cancer care with privileged contacts with cancer organizations. The project’s main achievement will be to prepare and disseminate suitable evidence based information for health professionals in order to help them to inform their patients.

NCCAM's Cancer Prevention and Treatment The National Center for Complementary and Alternative Medicine (NCCAM) is the Federal Government's (NIH's) lead agency for scientific research on the diverse medical and health care systems, practices, and products that are not generally considered part of conventional medicine.

Office of Cancer Complementary & Alternative Medicine
This National Cancer Institute unit's goal is to increase the amount of high-quality cancer research and information about the use of complementary and alternative modalities.

Pharmacological and Biological Treatment
American Cancer Society page lists evidence-based overviews, with reference, for non-traditional therapies.

Sloan Kettering - About Herbs, Botanicals, and Other Products
This site provides objective information for oncologists and healthcare professionals, including a clinical summary for each agent and details about constituents, adverse effects, interactions, and potential benefits or problems. Evaluations of alternative or unproved cancer therapies, as well as products for sexual dysfunction are included.

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Treatment Options - Drugs & Biologics

Editor: Grace Gmeindl, MLIS
West Virginia University Health Sciences Library
Morgantown, WV

FDA Approved Oncology Drugs
The site contains the list of FDA-approved oncology drugs and  regulatory information.

Approved Drug Products With Therapeutic Equivalence Evaluations - Electronic Orange Book
The FDA produces this book which contains products that have been approved under section 505 of the Federal Food, Drug, and Cosmetic Act.  It can be searched by active ingredient, proprietary name, or application holder.

What's New from the FDA's Office of Oncology Drug Products

NCI Drug Dictionary
The site contains technical definitions and synonyms for more than 500 agents that are being used in the treatment of patients with cancer or cancer-related conditions.

Pharmacological and Biological Treatment
American Cancer Society web page listing non-traditional therapies with structured overviews and references.

RxList
This commercial site can be searched by drug name, plus Advanced Search options for keyword, interaction, or side effects.

Cancer Care Ontario Drug Formulary
CCO Drug Formulary is an online Cancer Drug and Regimen information only website, reflecting the choices of chemotherapy used across Ontario. Resources include monographs for healthcare professionals; drug regimens by disease site and for supportive care and symptom control; plus ancillary information.

Center for Biologics Evaluation and Research (CBER)
FDA site contains information on research projects and product approval.  Not all links are specific to cancer or oncology.

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Selection Process & Disclaimer

No direct recommendation or sponsorship by MLA Cancer Section or MLA of these listed web resources is implied. The resources referenced here are intended to provide general information for you. Some resources will contain information that is the opinion of the author and is not necessarily that of your own healthcare providers. Please consult your healthcare provider for individual information on your specific condition.

In developing this resource, the Cancer Librarians Section editors use and recommend MLA's User Guide to Finding and Evaluating Health Information on the Web.

All sites on this page have been reviewed by members of the Cancer Librarians Section of MLA. Comments and suggestions should be sent to the section Web Editor for review by the selection committee.

       Contact the Web Editor:
         library @ fhcrc.org

       Last modified: 5-May-2014

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